ABOUT

About

"Beautiful and Brave"

“Beautiful and Brave” originated when Everly was only a few days old in the NICU. The most wonderful nurses cared for her and adorned her isolette with artwork that said “beautiful and brave”. No two words could describe our sweet girl better with all she has endured in her short life with such grace.


Little did we know that at only 5 weeks old, Everly would undergo the most invasive surgery: an epilepsy surgery called a hemispherectomy. We are overjoyed that she has reached seizure freedom as a result! Our heart is to respect Everly’s health history, so we share brief snippets online to help families see her amazing journey. We know the connection that occurs when families realize they are not alone, so we are always happy to share more privately! Everly has many diagnoses and medical conditions and sees countless specialists. We also prioritize a variety of amazing therapies to help with the effects of the hemispherectomy as well as her Autistic sensory and support needs.

Where we are now

I was thrust into the world of being a disability/medical mom with the birth of Everly (our first child). Becoming a parent is a life-changing event, but becoming the parent of a medically complex or disabled child is something that no one can prepare you for. Looking back, I wish I could have found the support I offer at Beautiful and Brave Advocacy. I spent countless days and nights (and still do!) researching, making phone calls, reading, searching, emailing, and more to figure out how to navigate this new world and find the best services and supports for Everly.


I have poured my heart and soul into this effort because I believe people with disabilities are worthy of support and a full life. Everly is my “why”, and it has spurred me on to support other families just like you.


How can Beautiful and Brave Advocacy

support my child / loved one?

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